Everybody Get’s Leucky, the fundraiser that we threw last Saturday, was a complete success. We were able to raise around three thousand dollars for the Leukemia and Lymphoma Society with the help and support of our friends, family, coworkers and community members. The event went off without a hitch and everybody but me was able to get nice and drunk in the name of Cancer. I was also able to make a lot of people who had no idea what was going on pretty uncomfortable with my inappropriate cancer jokes.
I fell down a well a couple weeks ago. It was cold, dark, damp and uncomfortable. Sting wasn’t available to dig me out (obscure Simpson’s reference) so I was left to luck and my own devices to get out. I was limited by the well’s steep walls and my insurmountable physical anemia. People could yell down to me and I could hear their words bounce and echo all around my cylindrical tomb, but it didn’t help the loneliness. One day, to my chagrin, I felt raindrops being sucked into my tiny hole in the world. The rain kept falling and the water started to rise at my feet. At first I was too tired, ill and depressed to do anything but passively float. The water continued to fill the well and lift me up with it. Eventually I couldn’t just float anymore and I had to start treading water. I was an active participate now on my skyward ride to freedom. When I climbed out of the top of the well I saw all of the people in my life who support me were standing around holding buckets and hoses. The sun was out and there wasn’t a cloud in the sky.
That’s my attempt to allegorically explain my uncharacteristic silence over the last few weeks. The first session of my outpatient chemo hit me hard. It took a couple of weeks but my body started to react to the chemical warfare brigade. The regimen is designed to destroy cells that replicate quickly like hair follicles, stomach lining and cancers. This left me with the silky smooth legs of a professional model and the bulimia symptoms of a professional model and the negative body self image of a professional model and the life crushing depression of a professional model. Add to this the debilitating pain in my entire central nervous system as a result of one too many intrathecal chemo injections. For those of you that don’t remember, that’s when they tap my spine and spray chemo drugs inside of it. The headaches became so bad that I couldn’t stand up without experiencing migraine caliber pain.
It was a bad couple of weeks. I spent a lot of time in a fetal position on the couch and a lot of time treating my toilet as kleenex and blowing my runny butt into it with the frequence of a head cold. I couldn’t walk up the stairs without having to lie down once I reached the top to catch my breath, nor could I fry an egg until completion before I had to sit on a stool to recoup. I was physically useless and my limitations started to fester in my brain. I began to get upset with myself and the situation and became grumpy and depressed. I did not want to be down in that well, but I was at the point where I couldn’t get out on my own.
It was a pretty bad time to be down there, too. My life was just starting to get back to normal, which means it was getting busy as hell. In the span of three weeks I moved into our new house, returned to work full time from home, had to plan the Everybody Get’s Leucky fundraiser party and organize the adult sports league that I operate. I was too busy be folded between the cushions of my couch or suctioned to a terlet.
At first I neglected my duties and allowed myself to float along with the rising water. Thankfully Liana was there to help keep my head above water otherwise I probably would have drowned. She had to work twice as hard during our move because I was about as physically useful as overcooked pasta. I’m endlessly thankful that she was there to help me, but also terrified of the payback in the event that she gets pregnant. There will be more pampers than at the diaper factory.
It might have appeared that the water in my allegory was actually the support of my friends and family, but it actually represents something more important and helpful to me: my obligations to them. Sending support down the well would have been dropping pillows and sandwiches to make my stay liveable and slightly more tolerable, but it would have done nothing to get me out.
A person who has no obligation to anything other than himself has no reason to live. We need to be productive to something other than ourselves. This urge governs our desire to reproduce, to be creative, to care for others and to participate in society in general.
This reminds me of one of the scariest experiences I’ve ever had. It happened while I was coming out of my cognitive episode in the hospital in early March. My brain had to relearn the world as the parts of it that had previously checked out during the frontal lobe governed crisis mode turned back on. I remember trying to make sense of where I was and what I was doing. At one point I truly believed that I was dead or at least in a coma in which my consciousness was doomed to live only in my small hospital room. When I tried to test the limits and leave my room, I was told by the nurse that I wasn’t allowed to do so. I asked her what I was supposed to do, and answered “stay here until you get better.”
She had no idea that I was struggling to understand the basic principles of reality at the time, so she didn’t understand that this would make me believe that I was actually in a coma and that the world that she and I were inhabiting was a limited simulacrum of reality. I thought I would live in that eternal loop without the ability to contact the outside world and thus sit there with no purpose for eternity. My subjectivity was trapped by the limitations of the room, and I only had my one nurse in there for company, though she was just an extension of the room itself. It was the most terrifying thing I’ve ever thought. I thought I was the only thing that existed, and thus I had no desire to exist.
The allegory fits into my previously established subjective existentialism worldview in which you are able to choose your perspective and values for your own benefit. It’s somewhat selfish at it’s core, but at our core we are all singular subjective beings so there is no option other than being selfish! I value my obligations to other people because it proves to me that I add value to something other than myself. These values are the basic building blocks of human society and the reason why anybody gets anything done.
The next time you find yourself just floating in your own well, have somebody dump some water in there and force yourself to swim out. You may swim out with a new raison d’etre or joie de virve or at least some foie gras.
Hey Friends, Fans, Families, Lovers, Laughers, Well Wishers, Followers, Supporters,
With a lot of help from a lot of helpy helpers we are officially unveiling cancertrolling.com.
It’s basically just a migration of this blog, but with a straight up legit domain name and stuff. We’re working on getting all the old blog links to transfer over to the new site at a single click, but I figured I’d just drop you a note here and let you know that you should be accessing all things CancerTrolling over on the dot com from now on. No more need for the dot wordpress junk.
As I’ve made it blatantly aware, this blog started out as a conduit for my brain and fingerrhea, but seems to be growing into something much bigger. The support this ide has received in just over a week has inspired me to do more with my life and (dare I say) talents than the previous 30 years. Please bear with me as I go through some growing (and cancer) pains while I try to grow the scope of this brand/empire/fuckfest into its true vision.
Stay tuned for some more fun, exciting, human, real, gritty, informative content to come!!!
Anything is possible with a little #leuck
Today (1/31/2015) marks the beginning of my second round of chemo. Yes, this is the third Chemo Sesh, but there are three(ish) seshes within each round of chemo. Today’s genocidal drugs that inflated my veins like a mutant carnival balloon animal were the same compounds that first entered my bloodstream a week ago on day one. The first implementation of these drugs, as you may remember, resulted in a slight metallic taste in my mouth and some neon peach pee pees.
According to the lovely and brilliant Ashley RN, this is the dose of the chemo that I should start feeling….hence the artsy fartsy color corrected picture above! Expect some more nit, grit, snark and dark. Continue reading
Chemo Romance, not that crappy band….
One of the hardest things about having the immune system of a kitten born prematurely with unrelenting feline AIDS is the lack of human contact. My chart says that I am “profoundly neutropenic,” which means that my white blood cell count is lower than snake piss (as we used to say in Upstate NY.) An errant fart could kill me at the moment, so everyone who enters my hospital suite has to wear a mask, gloves and a really stylish yellow gown made out of low-grade paper towels. My doctors and nurses handle me constantly, so I do have SOME contact, but that’s obviously not what I’m talking about. This is about being around my girlfriend.
To put it bluntly, my current physicality with Liana is about as fulfilling as a Mormon safe sex pamphlet. Ever since we’ve been separated by sterile barriers, I’ve realized how much I’ve taken for granted… There have been no hello kisses, no hand holdings, no skin-on-skin snuggles, no hair smellings (keeping this rated G, you PERVS.) The last feeling I had before falling asleep every night used to be her lips against mine, or at the very least a stray hand that fumbled toward me in the dark to maintain a symbolic contact.
Good Afternoon. How are you?
You weren’t kept waiting too long were you? Do you need anything a drink? Water? Coffee?
<Cancer Secretary, Did you take care of these nice people out there? Ok, thank you! Hold my calls for a while please!>
She’s fitting in so well here, I’m glad I hired her. Things have gotten MUCH better around these parts. Please have a seat.
Hey guys! So our RAs said it would be a nice idea if I wrote you a status letter, since I’m approaching the end of my first week here at the Colorado Blood Cancer Institute Dorms. It’s been quite the learning experience… All the other kids are cool, my RAs seem pretty chill (though they are awfully strict about some things, and I’m sure I’ll have to towel the door and hide my Coors Light behind the soda in my mini fridge) and the cafeteria food isn’t THAT bad. I miss the privacy and comforts of home, but the excitement of co-ed communal living also has its benefits. Sometimes I get to hang out in the common room with the other kids in the dorm and chillax out with some sick puzzles and crossword books. It’s pretty dope and chill and stuff. It’s not all about leisure time though, I’m here at the institute for a reason and that’s what I’ve been focusing on. I’ve pretty much committed my class schedule and syllabus to memory at this point, so I feel like I’m in pretty good shape to get my money’s worth and graduate on time with a better than average GPA. You’ll be proud of me, I promise.
Here is a rundown of my daily life at the institute:
Bet you never thought chemotherapy could be sexy, right? Well that’s why I’m here, to buttram your preconceived notions of all things Cancer. You can have fun, you can enjoy yourself, you can be sexy as fuck.
The peacock silk scarf appeals to those women out there who enjoy some flash and pizazz in a man- bright tail feathers to catch their attention. The messy unshowered greasy hair is for the bad boy trouble maker that they can’t help but loving, despite their best efforts to remove aloof danger from their lives. Bringing it all together is the come hither glance an slight lip pout. It’s a subtle expression, but more powerful than foot rubs and chocolate ice cream when played correctly.
Like many of you, the thought of a SPINAL TAP completely freaked me out. We’ve all heard horror stories, we all know the cultural stigma (like a root canal, but so much worse that people don’t even joke about it), and we’ve all heard Ween’s drippingly creepy “Spinal Meningitis.” Well, we probably all haven’t heard that song because it’s completely insane and obscure (which is how I like my musics to be). If you didn’t take the time to listen to it, or just couldn’t get through it because you’re a wimp, it’s sung from the perspective of a little kid who is experiencing the fear of an impending spinal tap.
Why they wanna see my spine mommy?
Why they wanna see my spine?
It’s gonna hurt again mommy
Much worse than last time
Am I gonna see God, mommy?
Am I gonna die?
It really hurts mommy!
Am I gonna die?
I’m feelin’ greasy mommyPlease don’t let me die
Stinky vaseline mommy!
Please don’t let me die
Everybody who knows me would describe me as a tightly wound anxious control freak. I used to wear this as a badge of honor, citing it as the example why most of our social endeavours end up working out so well. Somebody has to take charge sometimes to plan and organize things or else events will just devolve into people randomly walking into each other and losing their ability to speak English.
I’ve never been a “go with the flow” type. I don’t believe in the phrase. When water initially flows down a piece of land, physics and gravity guide it into a channel. It isn’t just a random karmic movement of flowing molecules… they are governed by real laws of science until they find the best possible channel down which to flow. I am a type of person that goes out and looks for that channel, and if it doesn’t exist… I dig it. It’s proactive pragmatic situation control… it works wonders in many disciplines of the world.